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Silent Records

Context (STAT News, 2026) STAT reported in June 2026 that about 98 percent of participants consent to share their health records, and that more than 300,000 participants had no EHR data in the program's database. Those figures are STAT's reporting, not computed here, and they rest on a different definition than the single-domain count drawn above.

Release
Release date
Fetched

Cohort total is the release catalog figure (cdrVersions.numParticipants). Each layer's participant count is its figure in domain-totals (survey modules, physical measurements, EHR domains, Fitbit) or genomics/participant-counts (genomic data types). Layers are drawn one at a time and separately; the public tier does not expose a de-duplicated union across them, so none is estimated. The motion is the finding: the field is the whole cohort, and what goes dark, chapter by chapter, is the part of it each layer does not cover.

Data: All of Us Research Program public Data Browser, public tier (aggregate counts rounded to 20, counts under 20 suppressed). This is an independent project and is not endorsed by NIH or the All of Us Research Program. Companion page: Cohort Atlas. Thinning draws the same one-mark-per-20 convention over a different population and definition: enrollment to date and the program's lifecycle steps from the Data Snapshots route, where this page shows the curated release cohort and its data layers.